September 08, 2010, 02:17:23 PM

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Author Topic: Hello to you all - update  (Read 200 times)

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Offline Sarah

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Hello to you all - update
« on: March 03, 2010, 12:53:03 PM »
Hi peeps, sorry havent been on here posting for a while, but I have been viewing the posts.

Just to update you a bit, I am still ok, but have been having some trouble with my right side of the body in that I have pins and needles and loss of sentation down the right side of the body including the leg.  I have had two major drop attacks recently, and got a phone call from my NS who wants to have another MRI scan.  Within 2 weeks I was booked in for next friday in Cornwall hospital, so am looking forward to that.

I have been kept busy trying to exercise since january and trying to lose weight and at the moment have lost a stone.  I am generally very tired at the end of the day, which I think is normal after everything we have gone through.

I have been in contact with Rachel over the last few months, who is progressing reasonably well, but having some problems a bit.  She doesnt want to come on to state her woes, but does look in on ocassions.

I am interested in helping to organise a gathering with Marina, although I know that she is due to go into surgery next week.  Are there still people interested?

TC all
Sarah
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CM & Hydrocephulus diagnosed December 2006, Decompression September 2009

Offline bex

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Re: Hello to you all - update
« Reply #1 on: March 03, 2010, 07:18:44 PM »
Hi Sarah,

sorry to hear your not well, I dont know if you read the post about marina??
she has not been too well either... I havent spoken to her today but she was still in the rehabilitation unit yesterday....
I would love to meet everyone too... i go in to hospital friday for surgery monday, and i get married in july so i dont have any time from work to use this year...

Rachel i hope you feel better soon too!!

Take care both xxxx
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Diagnosed ACM1 8mm. SM (C3 TO T3) 30/10/09. Foramen magnum decompression, fascia lata duraplasty (sewn leg to my head)  and laminectomy C1 C2 08/03/10.

Offline jade

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Re: Hello to you all - update
« Reply #2 on: March 03, 2010, 09:01:01 PM »
Sarah,

I'm still interested! would be great to meet everyone :)

Jade xx
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Re: Hello to you all - update
« Reply #3 on: March 07, 2010, 04:57:54 PM »
Hi sarah, Im sorry that you are feeling so bad at the mo! I had thought that you had been quiet... I hope your MRI goes ok.

I think we are all still interested and i know that marina will meet up if her recovery allows it, so obviously we will have to think of times of year as i know there are quite a few peeps with ops coming up! Let me know if you need to chat too! xxxx
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Offline Marina

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Re: Hello to you all - update
« Reply #4 on: March 13, 2010, 04:30:48 PM »
Oh Sarah! I don't know how I managed to miss this post.
I am so sorry you are not feeling too well at the moment, with all the nasty symptoms that we get from this condition I think the drop attacks are one of the worst, because most of the time there is no warning.

By the time you read this I hope you are feeling much better, my lovely.

Same thoughts as Laura, if you need a shoulder, you know where I am.

Hugs, Marina XXX
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Offline Sarah

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Re: Hello to you all - update
« Reply #5 on: March 15, 2010, 02:58:33 PM »
Ah thank you for all your concerns, thats sweet of you.

I had the MRI scan on Friday, and it all went ok, but I wont know the results yet for a while.  I will let you know when I do.

Got an appointment with Rachel tomorrow, theyhave come down here for a holiday and we are having a takeaway tomorrow.  I will let her know you are all thinking of her.

Cheers
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Offline Chris

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Re: Hello to you all - update
« Reply #6 on: March 15, 2010, 03:31:48 PM »
Hi Sarah

keep your chin up hunny ;) Glad that you are on the up and up tho!

looking forward to see your MRI results, and please give Rachel and Stefan my best???

TC

Chris
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http://www.chiariblog.co.uk 17mm herniation and syrinx from C1 to C3. Decompressed April 9th 2009 http://www.loscarmenes.co.uk http://www.loscarmenes.com

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Re: Hello to you all - update
« Reply #7 on: March 17, 2010, 07:14:16 PM »
Hi Sarah,  let us know what happens when you get your results then? i hope all goes ok for you xx
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