Poll

Where to hold the reunion?

Scotland
0 (0%)
North of England
2 (15.4%)
Midlands
8 (61.5%)
South East
2 (15.4%)
South West
1 (7.7%)
Wales
0 (0%)

Total Members Voted: 13

Author Topic: Meet up  (Read 1371 times)

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Offline joy

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Re: Meet up
« Reply #30 on: February 27, 2010, 08:19:43 AM »
I think it is a fantastic idea,I've never met anyone else with A.C.M;unfortunatly I live in N.Ireland.The travel costs ect would be above my budget,but I wish you all the best in getting it organised .
Got MRI results 26/10/09 A.C.M + Syrinx.
10/12/09-First appointment to see Neurosurgeon,hopefully he will be able to answer all my many questions & fears

Offline penfold

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Re: Meet up
« Reply #31 on: February 27, 2010, 08:18:00 PM »
I would love to meet up so i am a yes cos i will travel and june sounds brill but if i could be awkward.....? I cant do the last weekend as i have a wedding oop norf and its an all weekender (you know what these blinking northerners are like!) I shall be passed out by 9pm.... :)
Diagnosed CM June 09, 10mm Herniation and Decompression 25th November 2009.

Offline Chris

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Re: Meet up
« Reply #32 on: February 27, 2010, 08:29:30 PM »
steady!
http://www.chiariblog.co.uk 17mm herniation and syrinx from C1 to C3. Decompressed April 9th 2009 http://www.loscarmenes.co.uk http://www.loscarmenes.com

Offline penfold

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Re: Meet up
« Reply #33 on: February 28, 2010, 11:28:42 AM »
Hahahahaha! You know i'm not lying...! They is B.I.G drinkers.... :)
Diagnosed CM June 09, 10mm Herniation and Decompression 25th November 2009.

Offline candynich

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Re: Meet up
« Reply #34 on: February 28, 2010, 01:02:43 PM »
Hi, i've been recently diagnoesd with ACM,would love to meet up with others. i'm from wakefield

Offline candynich

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Re: Meet up
« Reply #35 on: February 28, 2010, 01:03:38 PM »
meant to say diagnosed!!

Offline Sarah

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Re: Meet up
« Reply #36 on: March 03, 2010, 12:39:35 PM »
Hi Candyinch (SP!)

Perhaps you could have a look at the hotel marina is mentioning.  See if they have any vacanicies, what prices etc,

If we have enough interest it canbe sorted for June I expect.  Not sure how far away it is from Cornwall, now going to check.
 Welcome to the forum
Sarah
CM & Hydrocephulus diagnosed December 2006, Decompression September 2009

Offline Babysox2003

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Re: Meet up
« Reply #37 on: March 03, 2010, 07:06:21 PM »
Hi guys,

I'm from Leicester in the Midlands and there is a Spa called Sketchley Grange where you can go for one night and use their facilities for 2 days. Bit more money maybe than an ordinary hotel but might be nice.

Romans Overnighter Experience (1 night between Monday to Saturday)

Use of Facilities for 2 Days

Overnight Accommodation

3 Course Dinner

Full English Breakfast

?69.00 per person

Something to maybe think about...................xx
Diagnosed with Chiari 15mm herniation Feb 2010
My sister was diagnosed with Chiari 18mm herniation Jan 2011

Offline Timelordess

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Re: Meet up
« Reply #38 on: March 03, 2010, 08:42:48 PM »
Ohh BabySox that sounds good ! We could all have a really good relax whilst there, and tbh, I don't think ?69 is that expensive when there's dinner and brekkie inc, and then the facilities. 
Love Em'z xoxo   
CM diagnosed April 2005.  Syrinx Diagnosed January 2010. Due surgery soon :)

Offline annemarie

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Re: Meet up
« Reply #39 on: March 03, 2010, 09:21:40 PM »
Not to put the dampers on things but ?69 person could be far too expensive for a lot of us especially in the current economic climate and sick pay etc. Certainly is for us as if we do persuade Natalie that it would be good for her to meet others in the same position as her then there would be 3 of us !!!!!!!!!

Would however still be interested in a meet up (Natalie dependant) depending on when as other daughter ties up a lot of summer weekends with marching band competitions

AM
Mum to Natalie CM, SM and Hydrocephalus. Decompressed and shunted Jan/Feb 2008 aged 14.

Offline Babysox2003

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Re: Meet up
« Reply #40 on: March 03, 2010, 10:21:10 PM »
Hi Annemarie, No worries lovely....was just a suggestion. I understand exactly where you are coming from. Am actually in debt management myself (since Dec 2008 :-( )  but as I would only have to find the money for me I could save up but finding the money for three is alot harder. There are alot more cheaper hotels out there. Just a case of looking around. Hugs, Mandy xx
Diagnosed with Chiari 15mm herniation Feb 2010
My sister was diagnosed with Chiari 18mm herniation Jan 2011

Offline Timelordess

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Re: Meet up
« Reply #41 on: March 04, 2010, 01:37:13 PM »
I've gotta say I didn't think about that.  I was thinking for one person...sorry :) I have 3 kids myself, so yeah that would be stupidly expensive Lol. But I'd be travelling on my own as hubby would have to stay at home with kiddies for me.
Sorry :) xoxo
CM diagnosed April 2005.  Syrinx Diagnosed January 2010. Due surgery soon :)